Seviyn Strong Heterotaxy Awareness Walk

We walk to bring visibility to a rare and often misunderstood condition.

Heterotaxy affects the arrangement of internal organs and can lead to complex medical challenges. Many families — especially mothers — are left navigating diagnoses, care, and advocacy without adequate guidance or support.

This walk brings together education, connection, and community for families who have felt unheard.

We walk for Sevyn, who continues to beat the odds.
We walk in remembrance of the children whose lives and legacies push us to fight for better understanding and support.

Heterotaxy is rare — but the families affected are not.

Too many caregivers are left to advocate alone, without access to resources, education, or community support. The Sevyn Strong Walk exists to change that by:

• Raising awareness and education around heterotaxy

• Creating space for families to connect and feel seen

• Supporting advocacy efforts for children and mothers

• Honoring warrior children and their journeys

Your support helps ensure families are not walking this road alone.

Sponsoring this event is an opportunity to invest in real, community-based maternal care.

Sponsors help make this work possible while aligning with a mission rooted in compassion, wellness, and sustainability.

Sponsorship benefits may include:

• Recognition on the event page and materials

• Inclusion in post-event acknowledgements

• Alignment with a trusted community nonprofit

Many families walk in honor of a child who continues to fight — or in remembrance of a child whose life inspires advocacy and change.

Sponsors and donors may choose to recognize a loved one on the Heart Heroes Honor Wall and through tribute ribbons during the walk.